Saturday, January 25, 2014

A Funny Thing Happened on the Way to Thanksgiving

One morning last November, I woke to tingling in my left hand and an aching joint at the elbow. I didn’t think much of it; I had been working a lot of hours and falling into bed exhausted. I just assumed that I slept on the arm wrong. However, after more than three days passed with the same issues, and the tingling in my hand turning into numbness I bit the bullet and called the doctor.

I was able to get an appointment within a couple of days, and I half thought the issue would resolve itself as soon as I walked in her door. Kind of like how the car stops having issues when you go to the mechanic. Sadly, this wasn’t the case. After some tests and discussion with the doctor she sent me to get x-rays. She thought I had a pinched nerve. I was able to get x-rays that day, however it was three days before I got the results from the doctor. When she called me, she told me several of the discs in my neck were flattened or compressed. I needed to have an MRI and she recommended me to a spine specialist.

This wasn’t my first rodeo with compressed discs. In 2011, I had issues with two discs in the lower portion of my spine. Fortunately, I was one large Cortisone shot away from relief. I went to see the spine specialist, and she noticed a lack of muscle strength in my left hand versus my right. As with my general practitioner, She insisted I get an MRI right away. It took time to get the MRI, due to financial concerns. I had an MRI done on Thursday before Christmas and on the Monday before Christmas I got my results.

Yes, I did have flattened discs in my spine. That, however, was a minor problem compared to the issue with my spinal cord. These are not words you want to hear anyone tell you. I sat there as the physician explained to me that I had a condition called cervical stenosis. What this means is that sheath around the spinal cord itself was compressing the spinal cord. When I asked how this happened, had I done something wrong? The surgeon explained in all likelihood I had been born this way, And that it had been progressive and over the years more and more pressure had been put on the cord.

We discussed my options, as well as the fact that without treatment the compression on my cord would continue and long-term damage was inevitable. Without the surgery, we wouldn’t know how much damage was already permanent. A little sick to my stomach, and more than a little worried, I discussed the diagnosis with a trusted few individuals.

Not only was I concerned about the actual problem, but I was concerned about the surgery. Surgeon had described it as a procedure with it have to go into the back of the neck shave away the bone and relieve the pressure on the cord. In fact he said it was a 45 minutes surgery, Great. It would also be a minimum 7 to 15 days for me to be a will to go back to work, and perhaps four weeks before I was feeling up to speed. These are averages however, And subject to change based on the individual patient. Because he could not predict what would happen during and after the surgery.

Now I was in a race against time, Not only against my deadlines but also my body. They scheduled the surgery for January 3. With so many ongoing projects, my goals became twofold: finish as many projects as I could and prepare Mini Me for what was to come, As well as make arrangements for someone to be here while I was recovering.

I did a lot of research about cervical stenosis and the procedure I was about to undergo. Sometimes research does not make you feel better, particularly when you could see all the things that could go wrong. Armed with my knowledge and confident I had done as much as I could, I was admitted for surgery very early in the morning on January 3.

What follows, are the pieces that I can remember. I went through the admission process, changed into it hospital gown, had the IV inserted and spoke to the various doctors and nurses associated with my surgery. After a grueling 80 minutes of waiting, they were finally ready to roll me into the surgical room. I remember the trip in almost vague clinical terms. A part of my brain catalogued each thing that I saw, made mental notes and thought how could I use this in a book?

They must have been the anesthesia shortly thereafter and eliminated whatever else I might’ve thought, because that thought was my last one until I woke up in recovery. The first thought I remember having was: oh my God it hurts. My mouth was dry, and my lips felt chapped. Yet it was the pain that was excruciating, so excruciating it seemed to shred my thoughts before I could fully form them. I managed to say the word hurt, but I don’t think anyone was there to hear me. I couldn’t see anyone, only the cold sterile ceiling above.

I tried to lift my arm, in a vain attempt to get someone’s attention and realized I couldn’t move my arm… I couldn’t move either one. So, amid the pain slicing through my brain, was this feeling a sudden terror. Had they paralyzed me? It had, after all, been one of the possible risks of the surgery. Panic ensued, and I think for a few seconds or maybe it was minutes I was almost incoherent. What would I do? I’m a writer, I need my hands. I’m a mother, I need my arms.

It was the thought of Mini Me that grounded me, I latched onto that thought with every fiber of my being. I was a mother— I am a mother. I need to be able to move my arms. And then the fingers on my right hand started to curl…

At some point during all of this, the nurses noticed I was awake and came to ask me how I was feeling. The only sentence I was able to get out was it hurts. I repeated it over and over again. Only two thoughts survived the shredding going on in my brain—my child, and my pain.

I weaved in and out of consciousness, as they gave me medicines for the pain. At some point, they told me they were admitting me to the hospital— I should mention here this is supposed to be an outpatient surgery. The trip from the recovery room to the hospital room, was a descent through hell. They’ve been giving me Morphine, but all that did was make me not care so much that I was in pain. It didn’t seem to take away the pain at all.

The lift from the surgical bed to the room bed, was so painful that I passed out. However, I was told later by one of the nurses, that I shouted “At least this will be good research.” Most of the rest of the day is a blur, I know a nurse fed me by hand because I couldn’t get my arms to do what I wanted them to do–but they were moving so I wasn’t paralyzed. On another upside, I had two of the most amazing nurses ever looking after me.



I also found out later, during the procedure they were monitoring neural activity, and they saw an increase of 30% in both my left and right arms. Now remember, I’d only had issues with my left. It seems the increased sensitivity in my right arm meant I felt everything including the air and it hurt.

Late Friday evening, Mini came to see me and though I knew she was scared, I saw the relief on her face when I tried to smile. It was difficult for both of us, but we both put on a brave face. I would be in the hospital until late Sunday afternoon. They released me only after they found the right combination medications to control my pain. Going home was an adventure, and one I only vaguely remember.

Once I was home, I slept in a recliner because I couldn’t lay flat and I had a 6 ½ inch incision on the back of my neck all the way to between my shoulder blades. I slept a lot that first week, Getting up to walk three and four times a day in slow circles and then going to sleep afterwards again because I was exhausted.

The circular injury is from the drain. This is 18 days post op


Most of that week remains a blur. The second week after my surgery, my hands were still extremely painful and electric shocks were still going off in the arms as the nerves seem to pulse with all this information I hadn’t gotten before. It was also release week for Some Like it Royal, and I had to be at my party online.

Thankfully, I have some great friends both online and local. My online friends helped keep the party going and helped me promote even as I slept so frequently and finished off-line. My local friends brought me food—everything from an amazing chicken pot pie to a lasagna and everything in between. Between the two of them I had meals for most of the first two weeks I was home that didn’t require any prep other than heating it up.

Yesterday marks week 3 since the surgery, I am finally able to type again, bit by bit my strength is returning to both arms. Now it’s a matter of completing my physical therapy, and getting plenty of rest, and retraining my hands to type. I have to get on that soon because I haven’t written in three weeks and it’s very crowded in my brain.

Every day is improvement, and while I’ve had to struggle with how much I have to sleep, I can’t really complain. I’m not paralyzed. I can type. I can hug my daughter. I think that’s a win-win. Thanks for listening…

Heather


27 comments:

  1. I am so sorry for everything that you went through. But you are so blessed to have friends, family and mini-me to be there and help you through it. Years ago I was in a motorcycle wreck, crushed my pelvis and fractured my hip in 5 places. Spent 29 days in Traction at the hospital and got to go home after 31 days. At first they told me that I would never walk again, then they said that I would walk but have a very bad limp, then they said I would never be able to carry a pregnancy to term because of no stability. I walk great, I only limp (slightly) when I am extremely tired and my daughter who I had through natural birth turned 16 a couple of months ago. It is a day by day process and some days are better than others. Keep your head up and your attitude positive and you can do anything!

    ReplyDelete
    Replies
    1. Wow, thanks for sharing your story with me Amy. I'm doing my best to stay positive. Sometimes being stubborn is a positive trait. :)

      Delete
  2. Wow. That sounds terrifying. This proves what a strong woman you are. You and Mini.
    I hope for a speedy recovery.

    ReplyDelete
    Replies
    1. Thanks Heather. Mini has been amazing, she really has been a rock for me through this. It also helps that we have such a similar sense of humor...I knew I was doing better the day she said, "Yeah, okay. Mocking may begin."

      Delete
  3. Wow...I had no idea! However, typing and hugs are really, really good! Cyber hugs from me.

    ReplyDelete
  4. OMG, I am so sorry you went through that! But it goes to prove what a strong individual you are.

    ReplyDelete
    Replies
    1. I've always believed in "needs must" and needing to be better and to get through this is working for me. Thank you :)

      Delete
  5. So glad you're progressing with your recovery. I know we chatted about what was going on, and that my hubby went through this surgery some time back. Looking at your scar, it's quite a bit longer than his was and from reading this post, your recovery has been more difficult, so I can only assume your surgery was more extensive. Having gone through this with him, and the pain he endured after his surgery, one can only imagine the level of pain you were facing. I'm so happy things are getting better for you, and know that I totally enjoyed being a part of Some Like It Royal's release! Stay strong, stay positive, and hug that little girl for me!

    ReplyDelete
    Replies
    1. Definitely and talking to you really helped me that evening, so thank you for that. When pain is involved it's always helpful to know someone else has walked where you are and made it out the other side.

      Delete
  6. So glad that you are on the mend and recovering well. That had to have been so very scary! You had a guardian angel watching over you. Will you be needing Physical Therapy?
    Wishing you all the best!

    ReplyDelete
    Replies
    1. Yes, I have regular exercises to do and walking every day. It's all one day at a time here.

      Delete
  7. That is way too scary! Glad you are on the mend and kudos to Mini for being so strong!! My dad has spinal stenosis and he is beyond surgery. The pain is horrific so I have some idea of the pain you went through.

    ReplyDelete
    Replies
    1. I am so sorry about your dad. I was really lucky, the surgeon said that was why he wanted to move fast. He felt that dealing with it quickly would hopefully minimizes long-term damage. So fingers crossed.

      Delete
  8. That was scary. I am so glad you are better.

    ReplyDelete
    Replies
    1. Thank you! Every day is an improvement and that's what keeps me going!

      Delete
  9. So strong and in will be pulling for you. If you knew my story you would know that I understand. Get better. ^~^

    ReplyDelete
  10. OMG I'm so sorry this happened. What a shock to find out something like this has been lurking all this time. I'd never even heard of this condition but it doesn't sound like a good one to leave untreated. Get well soon!

    ReplyDelete
    Replies
    1. It was a shock, and at the same time I'm really grateful that I went to the doc and that they all pushed me to do the tests and found out what was wrong before it progressed to irreparable.

      Delete
  11. So glad to hear you're getting better! I've missed you lots! And that's awesome that you had friends that helped you out when you needed it. :)

    <3

    ReplyDelete
    Replies
    1. Missed you too! So good to see your face last night and to laugh :)

      Delete
  12. Oh Heather! I don't even know what to say.Pain sucks. I'll keep you in my thoughts and hope your nerves heal and your PT helps a ton.

    ReplyDelete
    Replies
    1. Pain does suck. But I'm getting better, every single day. Thank you!

      Delete
  13. I understand your pain fully. I suffer with 6 compressed , bulging discs and stenosis in my lower bacl. My surgeon suggested similar surgey: I am lookng into laser surgery instead. This worsened after knee replacement surgery. My neck is in similar shape, but no symptoms. Keep up the phsical therapy; my prayers are with you and hugs, since that helps the healing, You will get better, but be patient with yorself and don't push it. :) <3

    ReplyDelete
    Replies
    1. Suzanne, thanks for sharing. *hugs* I hope the laser surgery works for you. And thank you for the well wishes. Healing thoughts right back atcha.

      Delete
  14. Take a chance A.B. McKinley's tote bag for a prize at Wild and Wicked; I make them up as a promotion for him. Say hi to Margie Church and ask Desiree Holt about her bottle of wine. :)

    ReplyDelete